I have the best girlfriends in the entire world. They are always checking in on me, always asking to get together with our kids…always trying to make sure I know that Reagan is loved and included…always, always, always loving my family. And Reagan LOVES to see new people, especially ones that are her size that she can […]

My heart gets some heavy sadness every so often. The best way to describe it is to watch this short video… That video just encapsulates what I miss, which is, the normalcy of Reagan growing up. Although, we had to keep her on a special GA-1 diet and that was out of the norm, she was meeting […]

I love watching movies. It’s a short escape from all your responsibilities where you can turn your mind off for around two hours and just sit, relax, and watch. No thinking required, all you have to do is keep your eyes and ears open and everything just happens in front of you. Now if you […]

It’s easy to choose joy when you’re in the midst of easy and happy circumstances. But our circumstances, are hard. I feel like we never have time to just enjoy a moment. We move from task to task, appt. to appt. When Reagan was having her surgery and we were waiting, it was very odd […]

I’ve been waiting to write this post for three weeks. I am the worst at keeping surprises, mainly b/c I want to share in the awesome immediately. So when I had a secret Reagan photo shoot orchestrated for Rob for Father’s Day, I almost spilled the beans b/c I was so excited. Literally one time at […]

Guys. Guys. GUYS! Rob and I went on a date tonight. Our lovely friends Rachel and Kelsi offered to watch Reagan while Rob and I went to dinner for some alone time and some wine (obviously). We’ve never left Reagan with anyone since her metabolic crisis, but since Rachel is a NICU nurse at one […]

Today Rob took Reagan to therapy and I was able to get a glorious nap, which helped to make up for my 5 a.m. wake up call. While in the waiting room, he spoke to a little boy’s grandmother about the little boy who was there for therapy. The grandmother told Rob that he was […]

That’s what I said in our Early Steps evaluation today when the mood in the room went from zero to ELEVEN. But let’s go back to the start of our day. We woke up at 5 a.m. to murderous screams from our daughter. And 45 minutes of soothing didn’t help, so Rob strapped her in […]

Some days are just so hard. Like today…therapy appointments at 10 and 10:30 a.m. Love that they’re back to back, don’t love that they’re in the middle of the morning nap time. And I don’t love that Reagan falls asleep five minutes before we arrive. (Sleep on the way, please!) So, I had a very […]

In case you were wondering while reading my last post why we are gunning for 10 therapy appts. a week…it’s b/c our insurance co. approved 75 therapies PER discipline between now and Sept. 20, 2014!  And I just confirmed with the rehab place that they’ve spoken to our insurance company and that we are good to […]