A blog about us. our lives. our struggles. our victories.

Rob and Anne-marie

You know what’s crazy about open cuts and wounds? They heal. We often say time heals all wounds but I tend to disagree with that statement. As a person who has had lots of wounds, other than just this massive physical wound that’s healed on top of my head, I think a more accurate statement […]

AM's Brain Surgery

What a difference a year makes! You hear people say that all the time, because in hindsight, problems or circumstances can be completely different in a year. What we don’t often hear is what a difference three years makes. Because that seems like an eternity, and it’s too hard envision all the work that will have […]

Hindsight

One Year Ago. Part 2. Exactly one year to the day. Do you ever have those moments where your whole heart breaks in two for your child? It’s happened a lot, but this past weekend I realized I needed to up my parenting game on the spot. It wasn’t just any teachable moment, it was […]

AAC/Sign Language

The #metoo hashtag is trending as a response to the Harvey Weinstein sexual harassment and assault allegations that were made last week. Many women are standing up and asserting that they’ve also dealt with sexual harassment or something worse. I can’t stay silent, I’m speaking up on behalf of all women and I think it’s safe […]

strong women

8/7/17 It’s been one week since my brain surgery and it’s literally crazy for me to think that a week ago I was undergoing surgery for something unknown. This entire process has been an exercise in trust and faith and it isn’t over, it’s never over. This song holds so true to every aspect of […]

AM's Brain Surgery

7/31/17 – surgery day The day of my surgery I woke up right to my alarm clock at 5 a.m. and moved pretty slowly through the morning. I wasn’t in the biggest rush to get to ORMC, given what was on the agenda, but when I got there, I was greeted with my praying posse […]

AM's Brain Surgery

7/24 & 7/25 I had a 24 hour EEG and decided to channel my inner gangster rapper. I mean, after all the emotional processing of this whole deal, if you can’t laugh, what can you do? The purpose of the EEG is to see if any of my brain waves look weird or can explain […]

AM's Brain Surgery

The last few days since getting my surgery date have felt really melancholy. I’m having trauma flashbacks to when Reagan was in the hospital. And maybe this is superficial, but my head is never going to be the same. I liken it to Reagan’s g-tube and her tummy never being the same. It’s never going […]

AM's Brain Surgery

On Tuesday I drove down to the medical records department for Arnold Palmer Hospital. It’s been three years since Reagan’s crisis and I remember so many specific details from that time. Driving down the 408 toward downtown, I started getting teary-eyed. I remember driving down here with my neighbor while Rob rode in the ambulance with Reagan. […]

God

I’m convinced that parenting a toddler is one of the most difficult things in life. Add to that the strong will of a bull (can I get an AMEN from parents who didn’t think they’d be trying to discipline a bull up in here?) I think Reagan believes I’m shaking a red flag in front […]

God

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