Hi, We're Rob, Anne-Marie & Reagan!
Welcome to our journey of infertility, adoption and our plunge into special needs parenting. We don't always know what we're doing, but we promise to share unfiltered & real stories that we write from our hearts. Thank you for following along as we continue journeying through Reagan's Glutaric Acidemia Type 1 diagnosis, her crisis, and continuous miraculous recovery.
If you're new, start here.
Want to catch up on the GA-1 blogs, including the blogs surrounding Reagan’s crisis?
This is a place where we want to talk, write, educate and connect with our readers. Not only will be be a resource for the GA-1 community, but for all parents navigating the world of special needs parenting.
Tough things can happen, and we never want to minimize the toll that can take on life, relationships and marriage. It might make you want to hide behind a chair. And that's Ok for a little bit, but please peak your head out because there are beautiful things around the corner.
Through experience and talking with one another, and counselors who let us "dump our life bucket", we want you to know that you can live a life that has hope.
You are not alone. If you've found this blog, please know that you're not alone.
with a little history
Four days after Reagan was born, we got a call from the state of Florida that marked us and forever changed us. Reagan was diagnosed with a very rare genetic disorder called Glutaric Academia Type 1 (GA-1). That call sucked all the air out of the room. Click here to read about that call.
On April 8, 2014 Reagan suffered a metabolic crisis, or a severe stroke that damaged a portion of her brain, as a result, she acquired a movement disorder called Chorea. She lost everything. Every milestone was gone. Our lives were shattered. We ran through the gamete of emotions: anger, fear, depression, hopelessness.
Friend, if you are in that place now, can we tell you that we’ve been there? It’s normal to want to give up, but keep reading and most importantly keep fighting. God continues to unfold beautiful miracles and triumphs in our family. The ride is wild, so hop on and subscribe to our newsletter!
In their hearts humans plan their course, but the LORD establishes their steps. - Proverbs 16:9
It's not a detour.
It's the way.
For as the heavens are higher than the earth,
so are My ways higher than your ways
and My thoughts than your thoughts. - Isaiah 55:9
Sometimes, the way