A blog about us. our lives. our struggles. our victories.

Rob and Anne-marie

It’s been a while since I’ve been here. Gosh, I guess my last post was in December of 2020. So much life has happened since then, for every single person on the planet. But tonight, is one night in a string of many, that I’ve been taken aback. When Reagan had her crisis over eight […]

As 2018 winds down, Rob and I sat down to reflect what this past year has looked like. And more importantly, we wanted to document things we never want to forget from this past year. I’m not a scrapbooker, we rarely print pictures. Social media documents our progress and this blog knits the highs and […]

What a difference a year makes! You hear people say that all the time, because in hindsight, problems or circumstances can be completely different in a year. What we don’t often hear is what a difference three years makes. Because that seems like an eternity, and it’s too hard envision all the work that will have […]

One Year Ago. Part 2. Exactly one year to the day. Do you ever have those moments where your whole heart breaks in two for your child? It’s happened a lot, but this past weekend I realized I needed to up my parenting game on the spot. It wasn’t just any teachable moment, it was […]

8/7/17 It’s been one week since my brain surgery and it’s literally crazy for me to think that a week ago I was undergoing surgery for something unknown. This entire process has been an exercise in trust and faith and it isn’t over, it’s never over. This song holds so true to every aspect of […]

Recently we took Reagan to a new neurologist in Columbus, OH, at Nationwide Children’s Hospital. The neurologist specializes in pediatric movement disorders and was recommended to us by Reagan’s first neurologist, who we absolutely loved and have missed terribly. It was a big deal to go to Columbus. We had to fly AND connect in Atlanta, […]

Well November flew by! We stayed super busy and so much happened, I truly don’t know how we’re at the end. Below is as concise of an update as I could fit in. As always, thanks for your prayers and continued support! Brain Plasticity Therapy This is a biggie. I know a lot of you were closely following […]

God has been stirring in me for a while. There’s a lot I want to share; it requires a lot of boldness, which I know I have, but this feels like a lot even for me. A couple months ago, a friend of ours told us of a man who has a healing ministry who was going […]

Earlier this week I had a Facebook memory come up…some memories are horrible, and they’ll always be horrible. I don’t like the reminder, Facebook. This was the memory. It’s a blog from two years ago, and in painstaking detail, I write about our eight day hospital stay. When I read it, I think: “maybe that’s where […]

Happy birthday, Reagan. Three years ago, we took this photo…it was before we knew anything was wrong with your newborn screening. A few short hours later, we received a call that would change our lives forever GA-1. We worked so hard to never get you sick… …but one day, you got sick. And we did […]

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