On Tuesday I drove down to the medical records department for Arnold Palmer Hospital. It’s been three years since Reagan’s crisis and I remember so many specific details from that time. Driving down the 408 toward downtown, I started getting teary-eyed. I remember driving down here with my neighbor while Rob rode in the ambulance with Reagan. […]

We’ve been starting our days around 4 a.m., sometimes earlier. Certainly not by choice, but apparently, Santa needs to be rocked, tucked in, or put into a ballet leotard by Reagan. Either way. It’s early, and I’m tired. And hungry. And not amused How does she have the strength to pull this chair around the room? […]

Well November flew by! We stayed super busy and so much happened, I truly don’t know how we’re at the end. Below is as concise of an update as I could fit in. As always, thanks for your prayers and continued support! Brain Plasticity Therapy This is a biggie. I know a lot of you were closely following […]

Can I be honest for a moment? Life is hard. Not just our life, I know yours is hard sometimes too. Let me tell you about this photo. It’s perfect. There’s nothing about this photo I wish were different. Her smile is straight, she’s sitting up nicely, she’s confident, her outfit is on point…it’s just perfect. […]

Rob and I took Reagan to the ENT today b/c of the multiple ear infections, constant fluid in her ears and two failed hearing tests. After a check today, surprise surprise, she has fluid in her ears. They also asked if Reagan snores and we said yes, so we get a bonus surgery of adenoid […]

Happy birthday, Reagan. Three years ago, we took this photo…it was before we knew anything was wrong with your newborn screening. A few short hours later, we received a call that would change our lives forever GA-1. We worked so hard to never get you sick… …but one day, you got sick. And we did […]

Have you been trying to potty train your toddler? Do you feel like you’re locked in a small cage with an animal who isn’t rational? Then you’ve come to the right place. I’m here to help you get out of potty training purgatory with this comprehensive guide. My experience in potty training will surely give […]

Haven’t been in a writing mood lately. The last time I wrote was after Thanksgiving, and I couldn’t publish it because it was just a hard post to put out there. I clicked ‘publish’ today and I hope you read it here. For the past month, Rob and I have been going back and forth […]

This is what community looks like. Our group of five families said lets have dinner together. Let’s pack our meals, grab a little take out, carry a blanket and set up on this lawn. Let’s talk, even if in broken conversation as we ask our kids to eat, sit still, chew or swallow. Let’s watch […]

One thing I’ve learned is that you need to wisely pick the battles you have with a toddler. For me, the nap battle was a losing one. So I ended them. My friends thought I was crazy…WHAT?!? No more naps? [insert cry emoticon for several rows of text]. It wasn’t worth it anymore. Sometimes we’d […]