A blog about us. our lives. our struggles. our victories.

Rob and Anne-marie

I’ve come to the conclusion that some kids are feral, they are wild, they beat to their own drum that isn’t sold on regular store shelves, it’s in the beyond, section.

I have been struggling with how to write this, what to say, what not to say and also how much to share. We share a lot. I feel like everyone who reads this knows everything about our story. But some things feel sacred or maybe I just want to keep the new harder things secret. […]

As 2018 winds down, Rob and I sat down to reflect what this past year has looked like. And more importantly, we wanted to document things we never want to forget from this past year. I’m not a scrapbooker, we rarely print pictures. Social media documents our progress and this blog knits the highs and […]

One Year Ago. Part 2. Exactly one year to the day. Do you ever have those moments where your whole heart breaks in two for your child? It’s happened a lot, but this past weekend I realized I needed to up my parenting game on the spot. It wasn’t just any teachable moment, it was […]

8/10/17 It’s 11 days post brain surgery and tumor removal. I’ve had a lot of time to reflect on so many events that have happened, not just in the last 11 days, but looking back on all of 2017 and the changes that happened. The thing I have gleaned most is how much I can […]

The last few days since getting my surgery date have felt really melancholy. I’m having trauma flashbacks to when Reagan was in the hospital. And maybe this is superficial, but my head is never going to be the same. I liken it to Reagan’s g-tube and her tummy never being the same. It’s never going […]

On Tuesday I drove down to the medical records department for Arnold Palmer Hospital. It’s been three years since Reagan’s crisis and I remember so many specific details from that time. Driving down the 408 toward downtown, I started getting teary-eyed. I remember driving down here with my neighbor while Rob rode in the ambulance with Reagan. […]

I’m convinced that parenting a toddler is one of the most difficult things in life. Add to that the strong will of a bull (can I get an AMEN from parents who didn’t think they’d be trying to discipline a bull up in here?) I think Reagan believes I’m shaking a red flag in front […]

Can I be honest for a moment? Life is hard. Not just our life, I know yours is hard sometimes too. Let me tell you about this photo. It’s perfect. There’s nothing about this photo I wish were different. Her smile is straight, she’s sitting up nicely, she’s confident, her outfit is on point…it’s just perfect. […]

Earlier this week I had a Facebook memory come up…some memories are horrible, and they’ll always be horrible. I don’t like the reminder, Facebook. This was the memory. It’s a blog from two years ago, and in painstaking detail, I write about our eight day hospital stay. When I read it, I think: “maybe that’s where […]

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