We don’t live too far from UCF and so we often drive through campus as a little detour when Reagan is sleeping and we need to kill time. Driving THE campus brings me back to when I was a college student. You learn a lot about yourself when you’re away from home, trying to find your […]

We have some new visitors to the blog, FB and Instagram pages so I wanted to give a quick update and overview of why we’re doing these auctions and what GA-1 is and how Reagan has been affected. Reagan has Glutaric Acidemia Type 1 (GA-1), a rare genetic disorder that was found on her newborn […]

I am super excited to write this update. After the Humana situation, our friends organized an Instagram auction for Reagan to help us cover the cost of her continuing care. The auction was a huge success raising over $1,800, not to mention close to 400 people learned more about Reagan’s story and we upped awareness for […]

We received Reagan’s EEG results on Thursday. NORMAL!! Her Neurologist was so pleased. No seizure activity at all…he said that’s either due to her brain normalizing and calming back down, OR the medications are working so much that no remnants of seizure activity can be detected. Rob and I truly believe it’s our Great Physician […]

Today at therapy a little girl, about five years old, walked by Reagan as she was in her walker and pointed and laughed at her. It was quick, it was as she passed by. And the little girl was being led out by her therapist to the waiting room to whoever was there for that […]

On Thursday Reagan was scheduled for a 24-hour EEG. Rob and I had been dreading it ever since it was scheduled. So much so that we rescheduled it for a later date. But Thursday finally approached and we geared up to go. We brought the bouncer, the pak and play, her high chair, a million […]

Well, not really. Summer lasts forever in Florida and there have been a few exceptionally HOT days! Perfect time to break out the backyard pool. Words don’t even do these photos that Rob took any justice. But, I will say, that when we put Reagan in this pool…I watch her and think to myself, “she’s just […]

Did you catch my reference in the title? Yeah…throw up. I figured if I had a title that was straight up referencing vomit, you probably wouldn’t read. But this post isn’t just about the mystery behind Reagan not being able to keep her food down, it’s going to be a mega update of what Reagan is […]

I know a lot of you have been asking, “how’s this Instagram auction for Reagan going to work?” And…”How do I get Instagram?” Let me help you out! How to get Instagram and why you should have it: It’s so easy to get Instagram…you can sign up by downloading the Instagram app to your phone, […]

The LORD says, “I will give you back what you lost to the swarming locusts, the hopping locusts, the stripping locusts, and the cutting locusts. It was I who sent this great destroying army against you. – Joel 2:25 I am SO excited to write this update! Tuesday, Rob and I drove to Jacksonville and […]