A blog about us. our lives. our struggles. our victories.

Rob and Anne-marie

We don’t live too far from UCF and so we often drive through campus as a little detour when Reagan is sleeping and we need to kill time. Driving THE campus brings me back to when I was a college student. You learn a lot about yourself when you’re away from home, trying to find your […]

We have some new visitors to the blog, FB and Instagram pages so I wanted to give a quick update and overview of why we’re doing these auctions and what GA-1 is and how Reagan has been affected. Reagan has Glutaric Acidemia Type 1 (GA-1), a rare genetic disorder that was found on her newborn […]

I am super excited to write this update. After the Humana situation, our friends organized an Instagram auction for Reagan to help us cover the cost of her continuing care. The auction was a huge success raising over $1,800, not to mention close to 400 people learned more about Reagan’s story and we upped awareness for […]

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