The LORD says, “I will give you back what you lost to the swarming locusts, the hopping locusts, the stripping locusts, and the cutting locusts. It was I who sent this great destroying army against you. – Joel 2:25
I am SO excited to write this update!
Tuesday, Rob and I drove to Jacksonville and back with Reagan for an appt. with a new Dr. to replace the one that retired from Nemours. We left at 9:30 a.m. and didn’t get back until 9 p.m. Suuuuuuuper long day, but so so good.
Almost the entire time in the car Rob and I listened to 90s music and guessed what year the song came out. I won, three games to ZERO…don’t challenge my Montell Jordan knowledge…I know how we do the 90s, baby.
We had no idea how Reagan would do in the car for two and a half hours, but she did awesome…she slept part of the way and then was in a stellar mood until we got to Jacksonville Beach for lunch. We ate at The Pier and the food was pretty great. If you know me, you know that I’m completely satisfied getting complimentary chips and salsa.
Rob and I have gotten pretty good at entertaining Reagan, while hooking her up to her G-tube, while eating, while making sure her hands don’t try to grab the G-tube, while having a conversation. Basically I sit at the very top right corner of my chair in pounce mode and Rob plays it cool and diffuses any stress that might be hanging out from my side of the table. I have no idea if people are noticing us, watching what we’re doing. I don’t know. We’re just doing what’s normal for our family. We laid all of Reagan’s medication syringes on the table, brought our own big mug to fill with hot water to warm her formula, I mean…it’s intense, that’s why I sit in the corner of my chair.
Anyway, lunch was awesome, >> and afterward << (My italics are for a small group of people and our little inside joke) we walked the pier.
After our little outing, it was down to business in downtown Jacksonville. We figured out where we needed to be and got to the office just in time for our appt. When we got called back, there were two people taking information and learning all about Reagan’s history. Rob and I happily told Reagan’s story. We talked about her milestones before her crisis, and her milestones after her crisis. The physical therapist was impressed. “Normally, standing and cruising are nine and ten month milestones. The fact that she’s re-gained those skills in just four months is incredible.”
Yeah. It IS incredible. And I just became so overwhelmingly grateful that God was, is and continues to answer prayers. I am so thankful that he is repairing what the locusts took away from Reagan. I am so thankful for everyone who prayed mighty, mighty prayers when Rob and I were in our darkest moments of despair. I am so thankful for Reagan’s little buddies praying for her. I am so thankful to be Reagan’s mom and I am so thankful to be married to Rob and that he is her dad.
Tuesday was a long day…but I feel like our family bond was strengthened. It’s an awesome feeling to feel, KNOW and see our family bond continue to be cultivated. It’s super rewarding to be a parent to Reagan and to watch her smile and laugh. I am constantly amazed at how she just goes with the flow of the day. She fussed two times, for maybe seven to ten seconds ALL day. She sat in a car seat or stroller almost ALL day and was happy as a clam. I am so thankful to have a daughter like her.
While in the Dr. office, we spoke with a social worker who seemed amazed at our 72 therapies/discipline allotment and told us that some cerebral palsy patients have 60 therapies that have to be used within two months and then they’re done for the year. Seriously?! That seems so inadequate. I honestly believe that God hand picked a guardian angel to help Reagan within the walls of Humana. How else can this be explained? And I am so grateful, so thankful. God is able to do anything. Anything is possible with Him. And I believe that Reagan will walk and Reagan will be a walking, talking miracle. I am so thankful to serve a mighty God…a God who dishes grace, mercy and love onto us every day.
Today was such a good day. The staff said they see miracles all the time…well, it’s time to see another, her name is Reagan.