On December 12, 2019 I rolled up to the hospital, not ready and not completely willing, to check in for surgery. After being diagnosed with stage zero breast cancer in October, 2019, it felt like surgery was light years away, I even tried calling to move it up, but after Thanksgiving the date flew toward […]

7/31/17 – surgery day The day of my surgery I woke up right to my alarm clock at 5 a.m. and moved pretty slowly through the morning. I wasn’t in the biggest rush to get to ORMC, given what was on the agenda, but when I got there, I was greeted with my praying posse […]

The thing mamma never did tell you is when those days would come or how they would make you feel. Like today. All I know is I left a therapy appt for Reagan and ended up at home in tears. The dishes were piled high, I looked at a massive pile of clean clothes on our […]

This past Sunday we went to church which was a pretty deal because we haven’t been in over a year and a half. Let that sink in. Eighteen months, no church with community. That’s 547 days and a lot of Sunday’s longing for a place our entire family could go. When Reagan had her crisis, we […]

You know how the Bible says not to worry about tomorrow b/c today has its own problems? Rob and I woke up early today. Thursdays are early days anyway b/c Reagan has therapy first thing in the morning, and today was also early b/c I had to show property first thing. We headed out the door, […]

We’ve had some pretty great weekends recently. Of course our life is not Instagram perfect, staged and always lovely, I’ll never pretend for a moment that it is, but we’ve stretched our boundaries, moved our comfort zone further out and have started exploring the world a bit more with Reagan. Last weekend we went to the […]

“Be exalted, O Lord, in your strength; we will sing and praise your might.” – Psalm 21:13 the very next verse “My God, my God, why have you forsaken me? Why are you so far from saving me, so far from my cries of anguish? O my God, I cry out by day, but you […]

After Reagan had her metabolic crisis (due to her genetic disorder, Glutaric Acidemia Type 1 or GA-1 for short), she had an MRI…and while we were waiting for the results, I just knew something was so very wrong. When Reagan woke up briefly, probably 18 hours after her seizures, she smiled but was so limp that […]

What I mean by that title is…as a family, let’s all go to bed at 8:30 p.m. and…SLEEP! Tuesday Reagan had her Nemours appt. and b/c she’s doing well eating (she has about 150g of food/day) and b/c she’s growing like a weed, and b/c she’s been able to tolerate seven oz. of formula via G-tube […]

On Thursday Reagan was scheduled for a 24-hour EEG. Rob and I had been dreading it ever since it was scheduled. So much so that we rescheduled it for a later date. But Thursday finally approached and we geared up to go. We brought the bouncer, the pak and play, her high chair, a million […]