Today Rob took Reagan to therapy and I was able to get a glorious nap, which helped to make up for my 5 a.m. wake up call. While in the waiting room, he spoke to a little boy’s grandmother about the little boy who was there for therapy. The grandmother told Rob that he was […]

Some days are just so hard. Like today…therapy appointments at 10 and 10:30 a.m. Love that they’re back to back, don’t love that they’re in the middle of the morning nap time. And I don’t love that Reagan falls asleep five minutes before we arrive. (Sleep on the way, please!) So, I had a very […]

There’s a picture on our fridge of me at age five with my new kitten, Frisky. I look at that photo pretty often, as it’s on the fridge, and I can’t help but think, “My parents were lucky that I was healthy. ALL parents who have healthy kids, that do normal things…they are so lucky, […]

I had heard this song before everything happened…it’s got more depth and meaning to me now. I’d recommend playing it while reading the post. I know Jesus walked on water, and I don’t want to minimize that, but he’s God…he can do that. However Peter, he’s like me…and he walked on the water too. Matthew 14:22-33 Meanwhile, […]

I seriously love my daughter. She’s a total rockstar. She is rocking therapy, trying to sit up more and more, rolling over, sleeping on her stomach, playing while on her belly like it’s no big deal and she’s eating food (not a ton, but a few tablespoons for breakfast, lunch and dinner). Unconditional love. I learn […]

Yesterday was one month since Reagan had her metabolic crisis. One month.   And it’s been two weeks since we’ve been doing this on our own. Seems like a lifetime. I can’t believe how long those two weeks have felt.  The farther we get away from April 8, 2014, the further and further we get away from […]

When we were in the hospital trying to wrap our minds around our new circumstances, my mom said something to me that I’ll never forget. You bloom where you’re planted, Anne-Marie. Wow. Thanks for the knowledge, Mom.

I think it’s inevitable for Rob and I to play back the 13 months of  Reagan’s perfect health. We both ask ourselves, “did we do something wrong?” Rob beats himself up over the food…he prepared the menu most days, he made her formula…but we were following everything to a T from our genetics Dr. and […]

It’s so hard to update Reagan’s status within a timely manner b/c so many things happen on a daily basis and we have to concentrate on absorbing the info and processing it…we’ve barely been able to discuss how all of this will look once we get home. So please forgive the re-cap from earlier in […]

I know I’ve mentioned the meaning of Reagan’s name before, but it’s worth mentioning again. Reagan means “little king” but some translations have it meaning “noble” and her middle name, Elle, means girl. She is quite the noble girl. Picking a name and meaning we liked was super important to Rob and I. I had […]