Is what I was thinking as I took a walk with Reagan in our neighborhood and met a new neighbor. Other than the fact that she seemed around my same age and had a daughter just two months younger than Reagan, I thought, “well…that’s where the similarities end.” Her daughter had blonde curly hair like […]

What I mean by that title is…as a family, let’s all go to bed at 8:30 p.m. and…SLEEP! Tuesday Reagan had her Nemours appt. and b/c she’s doing well eating (she has about 150g of food/day) and b/c she’s growing like a weed, and b/c she’s been able to tolerate seven oz. of formula via G-tube […]

Today is Nov. 8 and while that day may not have a lot of meaning to you, let me tell you why it’s important to me. Nov. 8 is my late Grandmother’s birthday. She was awesome. On Nov. 8, 2012 we got the call from our adoption agency that we were matched and expecting a […]

We don’t live too far from UCF and so we often drive through campus as a little detour when Reagan is sleeping and we need to kill time. Driving THE campus brings me back to when I was a college student. You learn a lot about yourself when you’re away from home, trying to find your […]

We have some new visitors to the blog, FB and Instagram pages so I wanted to give a quick update and overview of why we’re doing these auctions and what GA-1 is and how Reagan has been affected. Reagan has Glutaric Acidemia Type 1 (GA-1), a rare genetic disorder that was found on her newborn […]

We received Reagan’s EEG results on Thursday. NORMAL!! Her Neurologist was so pleased. No seizure activity at all…he said that’s either due to her brain normalizing and calming back down, OR the medications are working so much that no remnants of seizure activity can be detected. Rob and I truly believe it’s our Great Physician […]

On Thursday Reagan was scheduled for a 24-hour EEG. Rob and I had been dreading it ever since it was scheduled. So much so that we rescheduled it for a later date. But Thursday finally approached and we geared up to go. We brought the bouncer, the pak and play, her high chair, a million […]

Well, not really. Summer lasts forever in Florida and there have been a few exceptionally HOT days! Perfect time to break out the backyard pool. Words don’t even do these photos that Rob took any justice. But, I will say, that when we put Reagan in this pool…I watch her and think to myself, “she’s just […]

Did you catch my reference in the title? Yeah…throw up. I figured if I had a title that was straight up referencing vomit, you probably wouldn’t read. But this post isn’t just about the mystery behind Reagan not being able to keep her food down, it’s going to be a mega update of what Reagan is […]

The LORD says, “I will give you back what you lost to the swarming locusts, the hopping locusts, the stripping locusts, and the cutting locusts. It was I who sent this great destroying army against you. – Joel 2:25 I am SO excited to write this update! Tuesday, Rob and I drove to Jacksonville and […]