I absolutely hate it when Reagan gets sick or has a fever. She battled a low grade fever from Friday through the weekend with no other symptoms. One day she sneezed three times (I’d hardly call that a symptom) and one day her eyes were watery for about five minutes (what the heck is that?!). Due […]

After Reagan had her metabolic crisis (due to her genetic disorder, Glutaric Acidemia Type 1 or GA-1 for short), she had an MRI…and while we were waiting for the results, I just knew something was so very wrong. When Reagan woke up briefly, probably 18 hours after her seizures, she smiled but was so limp that […]

I had to make a video to fully share how Rob and I are reflecting on 2014. We hear allllll the time from people at how amazed they are with regard to Reagan’s progress. We are amazed too. I think it’s really important to remember where she was though, what she lost and how much […]

Is what I was thinking as I took a walk with Reagan in our neighborhood and met a new neighbor. Other than the fact that she seemed around my same age and had a daughter just two months younger than Reagan, I thought, “well…that’s where the similarities end.” Her daughter had blonde curly hair like […]

What I mean by that title is…as a family, let’s all go to bed at 8:30 p.m. and…SLEEP! Tuesday Reagan had her Nemours appt. and b/c she’s doing well eating (she has about 150g of food/day) and b/c she’s growing like a weed, and b/c she’s been able to tolerate seven oz. of formula via G-tube […]

Today is Nov. 8 and while that day may not have a lot of meaning to you, let me tell you why it’s important to me. Nov. 8 is my late Grandmother’s birthday. She was awesome. On Nov. 8, 2012 we got the call from our adoption agency that we were matched and expecting a […]

We don’t live too far from UCF and so we often drive through campus as a little detour when Reagan is sleeping and we need to kill time. Driving THE campus brings me back to when I was a college student. You learn a lot about yourself when you’re away from home, trying to find your […]

We have some new visitors to the blog, FB and Instagram pages so I wanted to give a quick update and overview of why we’re doing these auctions and what GA-1 is and how Reagan has been affected. Reagan has Glutaric Acidemia Type 1 (GA-1), a rare genetic disorder that was found on her newborn […]

I am super excited to write this update. After the Humana situation, our friends organized an Instagram auction for Reagan to help us cover the cost of her continuing care. The auction was a huge success raising over $1,800, not to mention close to 400 people learned more about Reagan’s story and we upped awareness for […]

We received Reagan’s EEG results on Thursday. NORMAL!! Her Neurologist was so pleased. No seizure activity at all…he said that’s either due to her brain normalizing and calming back down, OR the medications are working so much that no remnants of seizure activity can be detected. Rob and I truly believe it’s our Great Physician […]