Happy birthday, Reagan. Three years ago, we took this photo…it was before we knew anything was wrong with your newborn screening. A few short hours later, we received a call that would change our lives forever GA-1. We worked so hard to never get you sick… …but one day, you got sick. And we did […]

When our daughter Reagan had a metabolic crisis at 13 months old, a customer in Rob’s agency asked a hard question: “Oh, he has a special needs child? Do we need to take our business somewhere else? Will he be able to help us?” The employee on the phone handled it with such grace and truth, […]

The thing mamma never did tell you is when those days would come or how they would make you feel. Like today. All I know is I left a therapy appt for Reagan and ended up at home in tears. The dishes were piled high, I looked at a massive pile of clean clothes on our […]

I went to the Dr. the other day b/c I was having chest pain. I know why. I was stressed to the max having to deal with all of Reagan’s super expensive medication that she was close to running out of. Oh the joys of switching insurance co’s (her insurance co. last year, went under). […]

Have you been trying to potty train your toddler? Do you feel like you’re locked in a small cage with an animal who isn’t rational? Then you’ve come to the right place. I’m here to help you get out of potty training purgatory with this comprehensive guide. My experience in potty training will surely give […]

Haven’t been in a writing mood lately. The last time I wrote was after Thanksgiving, and I couldn’t publish it because it was just a hard post to put out there. I clicked ‘publish’ today and I hope you read it here. For the past month, Rob and I have been going back and forth […]

We saw Reagan’s new neurologist a couple weeks ago. We really like him. As he was examining Reagan he asked us what the MRI said since he didn’t have the records yet, and we let him know that the entire basal ganglia was damaged. He seemed to be disbelieving of that. “Both sides though?” “Ummm…Yes? […]

This is what community looks like. Our group of five families said lets have dinner together. Let’s pack our meals, grab a little take out, carry a blanket and set up on this lawn. Let’s talk, even if in broken conversation as we ask our kids to eat, sit still, chew or swallow. Let’s watch […]

One thing I’ve learned is that you need to wisely pick the battles you have with a toddler. For me, the nap battle was a losing one. So I ended them. My friends thought I was crazy…WHAT?!? No more naps? [insert cry emoticon for several rows of text]. It wasn’t worth it anymore. Sometimes we’d […]

One of Reagan’s doctors is moving (waaahhhh!!) He’s Reagan’s neurologist, and one of our three favorite doctors; let me tell you why. You’ve all heard about the things we were told by one of the other neurologists within the practice: “You need to make her comfortable, she won’t do anything, she won’t walk, she may not learn, […]