A blog about us. our lives. our struggles. our victories.

Rob and Anne-marie

7/31/17 – surgery day The day of my surgery I woke up right to my alarm clock at 5 a.m. and moved pretty slowly through the morning. I wasn’t in the biggest rush to get to ORMC, given what was on the agenda, but when I got there, I was greeted with my praying posse […]

AM's Brain Surgery

7/30/17 It’s one day until my surgery. This past week I’ve felt pretty good…the countdown was running in the background of my mind while I kept super busy with work, closings, showings, walk throughs, an EEG and a three hour pre-op appointment, not to mention the extreme patience often needed during Reagan’s v e r […]

AM's Brain Surgery

7/24 & 7/25 I had a 24 hour EEG and decided to channel my inner gangster rapper. I mean, after all the emotional processing of this whole deal, if you can’t laugh, what can you do? The purpose of the EEG is to see if any of my brain waves look weird or can explain […]

AM's Brain Surgery

The last few days since getting my surgery date have felt really melancholy. I’m having trauma flashbacks to when Reagan was in the hospital. And maybe this is superficial, but my head is never going to be the same. I liken it to Reagan’s g-tube and her tummy never being the same. It’s never going […]

AM's Brain Surgery

Recently we took Reagan to a new neurologist in Columbus, OH, at Nationwide Children’s Hospital. The neurologist specializes in pediatric movement disorders and was recommended to us by Reagan’s first neurologist, who we absolutely loved and have missed terribly. It was a big deal to go to Columbus. We had to fly AND connect in Atlanta, […]

Brain Plasticity

On Tuesday I drove down to the medical records department for Arnold Palmer Hospital. It’s been three years since Reagan’s crisis and I remember so many specific details from that time. Driving down the 408 toward downtown, I started getting teary-eyed. I remember driving down here with my neighbor while Rob rode in the ambulance with Reagan. […]

God

We’ve been starting our days around 4 a.m., sometimes earlier. Certainly not by choice, but apparently, Santa needs to be rocked, tucked in, or put into a ballet leotard by Reagan. Either way. It’s early, and I’m tired. And hungry. And not amused How does she have the strength to pull this chair around the room? […]

God

Well November flew by! We stayed super busy and so much happened, I truly don’t know how we’re at the end. Below is as concise of an update as I could fit in. As always, thanks for your prayers and continued support! Brain Plasticity Therapy This is a biggie. I know a lot of you were closely following […]

Brain Plasticity

I’m convinced that parenting a toddler is one of the most difficult things in life. Add to that the strong will of a bull (can I get an AMEN from parents who didn’t think they’d be trying to discipline a bull up in here?) I think Reagan believes I’m shaking a red flag in front […]

God

This past Tuesday Rob and I toured the Brain Plasticity Center here in Orlando. We spent two hours talking with them and looking through their facility. It was so amazing to hear testimonials from the staff in regards to how some of their youngest patients have responded to this therapy. The best way to describe what […]

Brain Plasticity

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