I started meal planning and of course, all my meals are being found on Pinterest. So naturally, there’s already a heightened level of anxiety because Pinterest food, is food blogger food. Every recipe appears to be made with ease and there’s professional pictures each step of the way to show how you too can do […]
These next several blogs are part of a series that I’d recommend be read in order. I haven’t wanted to post anything recently, and now you will understand why. For a variety of reasons, we decided to keep this information limited amongst a very small circle of people, but now that the picture is largely filled […]
8/7/17 It’s been one week since my brain surgery and it’s literally crazy for me to think that a week ago I was undergoing surgery for something unknown. This entire process has been an exercise in trust and faith and it isn’t over, it’s never over. This song holds so true to every aspect of […]
8/10/17 It’s 11 days post brain surgery and tumor removal. I’ve had a lot of time to reflect on so many events that have happened, not just in the last 11 days, but looking back on all of 2017 and the changes that happened. The thing I have gleaned most is how much I can […]
7/31/17 – surgery day The day of my surgery I woke up right to my alarm clock at 5 a.m. and moved pretty slowly through the morning. I wasn’t in the biggest rush to get to ORMC, given what was on the agenda, but when I got there, I was greeted with my praying posse […]
7/30/17 It’s one day until my surgery. This past week I’ve felt pretty good…the countdown was running in the background of my mind while I kept super busy with work, closings, showings, walk throughs, an EEG and a three hour pre-op appointment, not to mention the extreme patience often needed during Reagan’s v e r […]
7/24 & 7/25 I had a 24 hour EEG and decided to channel my inner gangster rapper. I mean, after all the emotional processing of this whole deal, if you can’t laugh, what can you do? The purpose of the EEG is to see if any of my brain waves look weird or can explain […]
The last few days since getting my surgery date have felt really melancholy. I’m having trauma flashbacks to when Reagan was in the hospital. And maybe this is superficial, but my head is never going to be the same. I liken it to Reagan’s g-tube and her tummy never being the same. It’s never going […]
Recently we took Reagan to a new neurologist in Columbus, OH, at Nationwide Children’s Hospital. The neurologist specializes in pediatric movement disorders and was recommended to us by Reagan’s first neurologist, who we absolutely loved and have missed terribly. It was a big deal to go to Columbus. We had to fly AND connect in Atlanta, […]
On Tuesday I drove down to the medical records department for Arnold Palmer Hospital. It’s been three years since Reagan’s crisis and I remember so many specific details from that time. Driving down the 408 toward downtown, I started getting teary-eyed. I remember driving down here with my neighbor while Rob rode in the ambulance with Reagan. […]
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