A blog about us. our lives. our struggles. our victories.

Rob and Anne-marie

This blog is written by both Rob and Anne-Marie. Indented and italicized paragraphs are written by Rob.  We visited the Clinic for Special Children, in Lancaster, PA. There’s a reason we decided to come here, in the middle of Pennsylvania, Amish community. There’s a man here, Dr. Strauss, a world-renowned specialist in GA-1. He helped […]

What a difference a year makes! You hear people say that all the time, because in hindsight, problems or circumstances can be completely different in a year. What we don’t often hear is what a difference three years makes. Because that seems like an eternity, and it’s too hard envision all the work that will have […]

Well November flew by! We stayed super busy and so much happened, I truly don’t know how we’re at the end. Below is as concise of an update as I could fit in. As always, thanks for your prayers and continued support! Brain Plasticity Therapy This is a biggie. I know a lot of you were closely following […]

God has been stirring in me for a while. There’s a lot I want to share; it requires a lot of boldness, which I know I have, but this feels like a lot even for me. A couple months ago, a friend of ours told us of a man who has a healing ministry who was going […]

One of Reagan’s doctors is moving (waaahhhh!!) He’s Reagan’s neurologist, and one of our three favorite doctors; let me tell you why. You’ve all heard about the things we were told by one of the other neurologists within the practice: “You need to make her comfortable, she won’t do anything, she won’t walk, she may not learn, […]

It’s 11:00 p.m. I open the door to Reagan’s dark room and step on the wood floors, hoping they don’t creak too loud. Rob walks in behind me, IV pole in hand…four little paws tap behind Rob. Reagan’s room is dark. The ocean sound machine is on, and her lullaby playlist, that we’ve played for her since […]

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