Yesterday was one month since Reagan had her metabolic crisis. One month.   And it’s been two weeks since we’ve been doing this on our own. Seems like a lifetime. I can’t believe how long those two weeks have felt.  The farther we get away from April 8, 2014, the further and further we get away from […]

It is really hard to look at “before” photos of Reagan. She was holding her head up when we held her at the three-month photos. She was sitting up on her own at her seven-month pictures. She was walking with assistance at 11 months. And now it seems like we are so far away from […]

When we were in the hospital trying to wrap our minds around our new circumstances, my mom said something to me that I’ll never forget. You bloom where you’re planted, Anne-Marie. Wow. Thanks for the knowledge, Mom.

This past weekend Rob and I decided to do things we normally would do. But we like to start our weekends with a bang…the kind that makes you wonder if emergency surgery is in the future.  Saturday morning started off great, until about 8:30 a.m. when I went to pull Reagan out of her high chair […]

I think it’s inevitable for Rob and I to play back the 13 months of  Reagan’s perfect health. We both ask ourselves, “did we do something wrong?” Rob beats himself up over the food…he prepared the menu most days, he made her formula…but we were following everything to a T from our genetics Dr. and […]

Rob and I came home with Reagan on Saturday after being in the hospital for 12 days. We needed those 12 days in the hospital and I can honestly say the past two weeks have been the hardest weeks of my entire life. The marriage vows “for better or for worse” are definitely being tested right […]

It’s so hard to update Reagan’s status within a timely manner b/c so many things happen on a daily basis and we have to concentrate on absorbing the info and processing it…we’ve barely been able to discuss how all of this will look once we get home. So please forgive the re-cap from earlier in […]

I know I’ve mentioned the meaning of Reagan’s name before, but it’s worth mentioning again. Reagan means “little king” but some translations have it meaning “noble” and her middle name, Elle, means girl. She is quite the noble girl. Picking a name and meaning we liked was super important to Rob and I. I had […]

Being in the hospital for eight days with my daughter has taught me a lot of things. I really don’t know how to begin this post, but as I write this on the sixth night of being in the hospital, I can tell you that we are ready to go home. With Reagan’s condition, Glutaric […]

Reagan received a pretty sweet wooden xylophone toy for Christmas that her Auntie Melissa brought back from her trip to Germany last year. It’s taken a while to teach Reagan not to put the wooden drum stick in her mouth…she still does it, but today…TODAY she used it to play the xylophone. And as clear […]