A blog about us. our lives. our struggles. our victories.

Rob and Anne-marie

I’ve been an emotional mess lately. Reagan is starting preschool this month. Yeah, this month. We signed her up in February, claiming the very last spot that was open, and I thought between February and August, I’d surely have enough time to prepare myself. But actually, I don’t think any amount of time would have […]

This past Sunday we went to church which was a pretty deal because we haven’t been in over a year and a half. Let that sink in. Eighteen months, no church with community. That’s 547 days and a lot of Sunday’s longing for a place our entire family could go. When Reagan had her crisis, we […]

Today I am super excited to have my FIRST ever guest blogger!! In light of the story you are about to read, the writer has requested to remain anonymous. But what they have to say is so important that I pray you read it, and consider how the world reacts to the writer and the […]

We’ve had some pretty great weekends recently. Of course our life is not Instagram perfect, staged and always lovely, I’ll never pretend for a moment that it is, but we’ve stretched our boundaries, moved our comfort zone further out and have started exploring the world a bit more with Reagan. Last weekend we went to the […]

It’s been almost TWO months since I wrote something.  To be perfectly honest, between an insanely busy real estate business and taking care of my two year old wonder, I have a list of BravoTV shows on the DVR that I’ve been using all my free time to get through. There’s my Thursday confession for […]

Just logged in to type another blog and noticed this one was never posted from April 2015. So while it’s delayed and it’s not what is happening today, I want to share. And hey, I think we can all use the reminder that God is God and we are not.   We just had a […]

There’s things you just don’t expect when you think of your life plan. Having a child with special needs is one of them. When Reagan had her metabolic crisis and we were in the hospital for two weeks, some Disney characters came around to take photos with the kids in the hospital. The photo we […]

I recently watched this TED talk by one of the leading Dr.’s in GA-1. Sometimes I forget how serious Reagan’s GA-1 is. I forget because I am truly, truly trying to not live in fear. I am doing everything I can all the time to trust God. When a fearful thought comes into my head, I […]

“Be exalted, O Lord, in your strength; we will sing and praise your might.” – Psalm 21:13 the very next verse “My God, my God, why have you forsaken me? Why are you so far from saving me, so far from my cries of anguish? O my God, I cry out by day, but you […]

After Reagan had her metabolic crisis (due to her genetic disorder, Glutaric Acidemia Type 1 or GA-1 for short), she had an MRI…and while we were waiting for the results, I just knew something was so very wrong. When Reagan woke up briefly, probably 18 hours after her seizures, she smiled but was so limp that […]

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