A couple weekends ago Rob and I went on our first vacation with baby Ray Ray…we rented a super cute beachfront cottage for four nights on New Smyrna Beach, we brought Bauer…and every item we deemed to possibly be important. Going on vacation was a huge confidence boost for us. Reagan went with us everywhere. […]

I am sitting here with hot tears just rolling down my face.  Reagan started foods…and it is really exciting. But my baby eating foods is not like your baby eating foods. Reagan’s dietician Sandy gave us menus to work with as Reagan starts food…we have a certain amount of Lysine Reagan can have a day. During […]

It’s been a while since I’ve posted and that’s due to a lot of things…1) I need to be in the mood to write 2) I’ve been super busy and 3) while I could whip up a blog post, if I’m not “feeling it” or feeling in the mood to let my words flow without […]

The other day, someone found my blog whose child also has a metabolic disorder.  She linked to her blog and I thought…hmmm, do I want to read what their child has? I skimmed the blog titles and read a few, looked at a few pictures, all seemed normal, even though the child had a liver […]

I have to say that Rob and I love Nemours…and we go there so much so I’m glad we do love the hospital and the team of people that care for Reagan. The newest issue of the Nemours Together Magazine features Reagan’s story.  I’ve put the article below so you can see it.

Seriously so proud of my little girl. Just something I’d like to share, Reagan Elle means “noble girl” and she’s already starting to live up to the meaning of her name.  I don’t know what God has in store for her or for us, but a friend of mine at church recently said to me: […]

The title of this blog is a complete oxymoron, but there’s good reason.  Let me explain… In my mind, I feel the need to control every situation for Reagan.  Who am I going to let be around her…who have THOSE people been around…and so on and so forth.  You would call that a tight grip, […]

Reagan is coming up on 12 weeks and I feel like Rob and I have come SO far since she’s arrived.  We’ve grooved in to a pretty great routine with bottle making, feedings and making sure our dog Bauer still gets tons of love.  Reagan is eating well (now at 30oz every single day).  Her […]

April 13, 2013 was the first time Rob and I have been able to go church since Reagan was born.  Man, it was amazing to go and see our friends and sing and worship and just be in the place we have called our church home for the past four years or so.  Sure we […]

Funny things happen in the middle of the night.