I have to say that Rob and I love Nemours…and we go there so much so I’m glad we do love the hospital and the team of people that care for Reagan.
The newest issue of the Nemours Together Magazine features Reagan’s story. I’ve put the article below so you can see it.
August 3rd, 2013 at 2:39 am
Your story resonates with me deeply! While I didn’t struggle with infertility, I do have a son born with a rare metabolic disorder. My son was born with MSUD, and we, too, learned about it through newborn screening! Thank you for sharing your story so that other families struggling with having a child with a metabolic condition and feel less alone!