Rob and I were so excited for Reagan’s first Thanksgiving…earlier in the week, our team at Nemours decided we could try to give her a few “thanksgiving” items. As in, real foods, not baby food, so we were so excited to measure out sweet potatoes from the casserole and even have her taste a little […]

Brace yourselves everyone…I’m about to get REAL in today’s blog post…I’m not holding back, it’s my blog and I can say what I want, which is probably the last great thing remaining about this country since health care is going down the tubes. Anyway, this is my story on how Obamacare affects my family and […]

A couple weekends ago Rob and I went on our first vacation with baby Ray Ray…we rented a super cute beachfront cottage for four nights on New Smyrna Beach, we brought Bauer…and every item we deemed to possibly be important. Going on vacation was a huge confidence boost for us. Reagan went with us everywhere. […]

I am sitting here with hot tears just rolling down my face.  Reagan started foods…and it is really exciting. But my baby eating foods is not like your baby eating foods. Reagan’s dietician Sandy gave us menus to work with as Reagan starts food…we have a certain amount of Lysine Reagan can have a day. During […]

It’s been a while since I’ve posted and that’s due to a lot of things…1) I need to be in the mood to write 2) I’ve been super busy and 3) while I could whip up a blog post, if I’m not “feeling it” or feeling in the mood to let my words flow without […]

The other day, someone found my blog whose child also has a metabolic disorder.  She linked to her blog and I thought…hmmm, do I want to read what their child has? I skimmed the blog titles and read a few, looked at a few pictures, all seemed normal, even though the child had a liver […]

Out of the Mouth, the Heart Speaks. I’ve always loved that verse, especially that particular part; out of the mouth, the heart speaks. Below are the verses in context. Matthew 12:33-37 33“Either make the tree good and its fruit good, or make the tree bad and its fruit bad; for the tree is known by […]

So much on my mind lately… I have a post about the words you say and the character that reveals, but that will come in a few weeks.  For now I just want to say that I’ve received wisdom in some unexpected places recently. My college roommate, Sami, came to visit me the other day.  […]

I have to say that Rob and I love Nemours…and we go there so much so I’m glad we do love the hospital and the team of people that care for Reagan. The newest issue of the Nemours Together Magazine features Reagan’s story.  I’ve put the article below so you can see it.

Seriously so proud of my little girl. Just something I’d like to share, Reagan Elle means “noble girl” and she’s already starting to live up to the meaning of her name.  I don’t know what God has in store for her or for us, but a friend of mine at church recently said to me: […]