A blog about us. our lives. our struggles. our victories.

Rob and Anne-marie

Reagan is starting to talk more. It. Is. Amazing. She’s six, and has just starting stringing multiple words together. This is something we (collectively, my family and anyone else who has prayed) have prayed diligently for, for over five years. Have you ever wanted something so badly you didn’t think you would be able to […]

Milestones

We’re coming up on the FIVE YEAR anniversary of Reagan’s crisis. It happened April 8, 2014. Back then, things looked grim, like they were over. But oh, how God can take the really awful things and make them really awesome. Only God can take a locust destroyed land, and restore it, as if the locusts […]

Hindsight

I have been struggling with how to write this, what to say, what not to say and also how much to share. We share a lot. I feel like everyone who reads this knows everything about our story. But some things feel sacred or maybe I just want to keep the new harder things secret. […]

Life

As 2018 winds down, Rob and I sat down to reflect what this past year has looked like. And more importantly, we wanted to document things we never want to forget from this past year. I’m not a scrapbooker, we rarely print pictures. Social media documents our progress and this blog knits the highs and […]

God

A single grain of wheat will never be more than a single grain of wheat unless it drops into the ground and dies. Because then it sprouts and produces a great harvest of wheat—all because one grain died. I’ve been thinking on those words for a few days now and what they mean in our […]

God

This blog is written by both Rob and Anne-Marie. Indented and italicized paragraphs are written by Rob.  We visited the Clinic for Special Children, in Lancaster, PA. There’s a reason we decided to come here, in the middle of Pennsylvania, Amish community. There’s a man here, Dr. Strauss, a world-renowned specialist in GA-1. He helped […]

GA-1

You know what’s crazy about open cuts and wounds? They heal. We often say time heals all wounds but I tend to disagree with that statement. As a person who has had lots of wounds, other than just this massive physical wound that’s healed on top of my head, I think a more accurate statement […]

AM's Brain Surgery

Ok, so I know the last blog was about making it to the mountain top, and yes, the metaphors that go along with that and our life are poignant, but it dawned on me, that mountains still have rocky terrain. You’ve got the view and perspective of where you’ve been when you get to the top, […]

God

Four years ago, if you told me that we’d travel to another country WITH Reagan, I’d say you’re crazy. But here we are, on top of mountains, doing things we never even dreamed our family could partake in. This trip is exceedingly, abundantly more, than we could have ever imagined. Guys, there’s snow, in JULY! […]

God

We are so very excited to announce that the Plasticity Brain Center is offering a discounted price for one week of therapy for Reagan and for Brian. For coming in second, Reagan will be able to attend for $1500 and Brian will be able to attend for $2500. In speaking with the center, we’ve been […]

Brain Plasticity

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