A blog about us. our lives. our struggles. our victories.

Rob and Anne-marie

This blog is written by both Rob and Anne-Marie. Indented and italicized paragraphs are written by Rob.  We visited the Clinic for Special Children, in Lancaster, PA. There’s a reason we decided to come here, in the middle of Pennsylvania, Amish community. There’s a man here, Dr. Strauss, a world-renowned specialist in GA-1. He helped […]

GA-1

You know what’s crazy about open cuts and wounds? They heal. We often say time heals all wounds but I tend to disagree with that statement. As a person who has had lots of wounds, other than just this massive physical wound that’s healed on top of my head, I think a more accurate statement […]

AM's Brain Surgery

Ok, so I know the last blog was about making it to the mountain top, and yes, the metaphors that go along with that and our life are poignant, but it dawned on me, that mountains still have rocky terrain. You’ve got the view and perspective of where you’ve been when you get to the top, […]

God

Four years ago, if you told me that we’d travel to another country WITH Reagan, I’d say you’re crazy. But here we are, on top of mountains, doing things we never even dreamed our family could partake in. This trip is exceedingly, abundantly more, than we could have ever imagined. Guys, there’s snow, in JULY! […]

God

We are so very excited to announce that the Plasticity Brain Center is offering a discounted price for one week of therapy for Reagan and for Brian. For coming in second, Reagan will be able to attend for $1500 and Brian will be able to attend for $2500. In speaking with the center, we’ve been […]

Brain Plasticity

When everything is taken from you and your normal is shattered, it’s impossible to know where to start to put the pieces back together. Especially at the beginning. Once you begin getting the shape of your new normal, a piece falls off. Maybe it wasn’t meant to stick. Maybe the glue that was holding it […]

Brain Plasticity

What a difference a year makes! You hear people say that all the time, because in hindsight, problems or circumstances can be completely different in a year. What we don’t often hear is what a difference three years makes. Because that seems like an eternity, and it’s too hard envision all the work that will have […]

Hindsight

One Year Ago. Part 2. Exactly one year to the day. Do you ever have those moments where your whole heart breaks in two for your child? It’s happened a lot, but this past weekend I realized I needed to up my parenting game on the spot. It wasn’t just any teachable moment, it was […]

AAC/Sign Language

Ever feel like you’re just surviving and hanging on by a thread? Yet somehow you muster enough strength to get to the end of the day, collapsing at the finish line, staying asleep there, only to wake up at the beginning of the race come morning? This feels like my current life stage, it’s my […]

God

The #metoo hashtag is trending as a response to the Harvey Weinstein sexual harassment and assault allegations that were made last week. Many women are standing up and asserting that they’ve also dealt with sexual harassment or something worse. I can’t stay silent, I’m speaking up on behalf of all women and I think it’s safe […]

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