A blog about us. our lives. our struggles. our victories.

Rob and Anne-marie

I can’t believe summer 2019 is coming to a close. What a wild adventure our family has gone on; our hearts have been stretched, broken and uplifted. We’ve stepped outside of our comfort zones, seen new things and watched as Reagan’s grit and personality continues to unfold with every new word she’s able to say. […]

The hospital

If you haven’t read our last vacation re-cap, you can read it by clicking here. That was only three weeks ago, and I’m thinking it was our worst family vacation to date, but here we are facing all our fears again, and traveling even farther with Reagan. It’s amazing we were able to muster up […]

vacation

I’ve come to the conclusion that some kids are feral, they are wild, they beat to their own drum that isn’t sold on regular store shelves, it’s in the beyond, section.

Real Talk

Reagan is starting to talk more. It. Is. Amazing. She’s six, and has just starting stringing multiple words together. This is something we (collectively, my family and anyone else who has prayed) have prayed diligently for, for over five years. Have you ever wanted something so badly you didn’t think you would be able to […]

Milestones

We’re coming up on the FIVE YEAR anniversary of Reagan’s crisis. It happened April 8, 2014. Back then, things looked grim, like they were over. But oh, how God can take the really awful things and make them really awesome. Only God can take a locust destroyed land, and restore it, as if the locusts […]

Hindsight

I have been struggling with how to write this, what to say, what not to say and also how much to share. We share a lot. I feel like everyone who reads this knows everything about our story. But some things feel sacred or maybe I just want to keep the new harder things secret. […]

Life

As 2018 winds down, Rob and I sat down to reflect what this past year has looked like. And more importantly, we wanted to document things we never want to forget from this past year. I’m not a scrapbooker, we rarely print pictures. Social media documents our progress and this blog knits the highs and […]

God

A single grain of wheat will never be more than a single grain of wheat unless it drops into the ground and dies. Because then it sprouts and produces a great harvest of wheat—all because one grain died. I’ve been thinking on those words for a few days now and what they mean in our […]

God

This blog is written by both Rob and Anne-Marie. Indented and italicized paragraphs are written by Rob.  We visited the Clinic for Special Children, in Lancaster, PA. There’s a reason we decided to come here, in the middle of Pennsylvania, Amish community. There’s a man here, Dr. Strauss, a world-renowned specialist in GA-1. He helped […]

GA-1

You know what’s crazy about open cuts and wounds? They heal. We often say time heals all wounds but I tend to disagree with that statement. As a person who has had lots of wounds, other than just this massive physical wound that’s healed on top of my head, I think a more accurate statement […]

AM's Brain Surgery

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