A blog about us. our lives. our struggles. our victories.

Rob and Anne-marie

This is what community looks like. Our group of five families said lets have dinner together. Let’s pack our meals, grab a little take out, carry a blanket and set up on this lawn. Let’s talk, even if in broken conversation as we ask our kids to eat, sit still, chew or swallow. Let’s watch […]

One thing I’ve learned is that you need to wisely pick the battles you have with a toddler. For me, the nap battle was a losing one. So I ended them. My friends thought I was crazy…WHAT?!? No more naps? [insert cry emoticon for several rows of text]. It wasn’t worth it anymore. Sometimes we’d […]

One of Reagan’s doctors is moving (waaahhhh!!) He’s Reagan’s neurologist, and one of our three favorite doctors; let me tell you why. You’ve all heard about the things we were told by one of the other neurologists within the practice: “You need to make her comfortable, she won’t do anything, she won’t walk, she may not learn, […]

We just got done with our annual 24-hour EEG and Reagan did awesome. Remember last year’s EEG? We were stuck in a tiny room, in our Dr.’s outpatient facility, it was 80 degrees, we had to share a community bathroom with 12 other patients, Reagan exploded out of her diaper in a bouncer and she […]

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