A blog about us. our lives. our struggles. our victories.

Rob and Anne-marie

Hear the cries of my heart, O Lord my God; listen to my prayer. Each morning and evening I put on the whole armor of God so  can stand against the wiles of the devil, but my spirit grows weary. Strengthen me; Equip me; Give me the endurance I desperately need during these times according to your […]

Lord, I have no words for where you’ve placed us. It is not a valley, it is a mine shaft. Few have been this low. Why do you place us here? You are the potter, why are you breaking me? Where is the beautiful pot or vase of my life? What are you shaping me […]

Dear Panera located at Mitchell Hammock, Can you please get my order right? Ever since you opened I’ve wanted to love you so much. You’ve treated me really crappy…but I keep coming back. You’re like a terrible ex-boyfriend that I can’t shake. All your other locations have been so good to me. They’ve been consistent, […]

I was challenged to write a Psalm for Reagan to help process, heal, etc. Rob and I will be writing Psalms as we journey through this phase of life and sharing them here. This is my first Psalm. The rain has come, it’s the worst storm of life, and you have brought our worst fears […]

I love watching movies. It’s a short escape from all your responsibilities where you can turn your mind off for around two hours and just sit, relax, and watch. No thinking required, all you have to do is keep your eyes and ears open and everything just happens in front of you. Now if you […]

Some days are just so hard. Like today…therapy appointments at 10 and 10:30 a.m. Love that they’re back to back, don’t love that they’re in the middle of the morning nap time. And I don’t love that Reagan falls asleep five minutes before we arrive. (Sleep on the way, please!) So, I had a very […]

Yesterday was one month since Reagan had her metabolic crisis. One month.   And it’s been two weeks since we’ve been doing this on our own. Seems like a lifetime. I can’t believe how long those two weeks have felt.  The farther we get away from April 8, 2014, the further and further we get away from […]

It is really hard to look at “before” photos of Reagan. She was holding her head up when we held her at the three-month photos. She was sitting up on her own at her seven-month pictures. She was walking with assistance at 11 months. And now it seems like we are so far away from […]

This past weekend Rob and I decided to do things we normally would do. But we like to start our weekends with a bang…the kind that makes you wonder if emergency surgery is in the future.  Saturday morning started off great, until about 8:30 a.m. when I went to pull Reagan out of her high chair […]

I think it’s inevitable for Rob and I to play back the 13 months of  Reagan’s perfect health. We both ask ourselves, “did we do something wrong?” Rob beats himself up over the food…he prepared the menu most days, he made her formula…but we were following everything to a T from our genetics Dr. and […]

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