There’s a picture on our fridge of me at age five with my new kitten, Frisky. I look at that photo pretty often, as it’s on the fridge, and I can’t help but think, “My parents were lucky that I was healthy. ALL parents who have healthy kids, that do normal things…they are so lucky, […]

I had heard this song before everything happened…it’s got more depth and meaning to me now. I’d recommend playing it while reading the post. I know Jesus walked on water, and I don’t want to minimize that, but he’s God…he can do that. However Peter, he’s like me…and he walked on the water too. Matthew 14:22-33 Meanwhile, […]

I seriously love my daughter. She’s a total rockstar. She is rocking therapy, trying to sit up more and more, rolling over, sleeping on her stomach, playing while on her belly like it’s no big deal and she’s eating food (not a ton, but a few tablespoons for breakfast, lunch and dinner). Unconditional love. I learn […]

Yesterday was one month since Reagan had her metabolic crisis. One month.   And it’s been two weeks since we’ve been doing this on our own. Seems like a lifetime. I can’t believe how long those two weeks have felt.  The farther we get away from April 8, 2014, the further and further we get away from […]

It is really hard to look at “before” photos of Reagan. She was holding her head up when we held her at the three-month photos. She was sitting up on her own at her seven-month pictures. She was walking with assistance at 11 months. And now it seems like we are so far away from […]

This past weekend Rob and I decided to do things we normally would do. But we like to start our weekends with a bang…the kind that makes you wonder if emergency surgery is in the future.  Saturday morning started off great, until about 8:30 a.m. when I went to pull Reagan out of her high chair […]

I think it’s inevitable for Rob and I to play back the 13 months of  Reagan’s perfect health. We both ask ourselves, “did we do something wrong?” Rob beats himself up over the food…he prepared the menu most days, he made her formula…but we were following everything to a T from our genetics Dr. and […]

Today Rob and I went to several places with Reagan to see what kind of therapies and options for care we had available. It started with a trip to the medical day care about 30 minutes from our house and we weren’t overly thrilled with that option or location. While it’s run by a competent […]

Rob and I came home with Reagan on Saturday after being in the hospital for 12 days. We needed those 12 days in the hospital and I can honestly say the past two weeks have been the hardest weeks of my entire life. The marriage vows “for better or for worse” are definitely being tested right […]

It’s so hard to update Reagan’s status within a timely manner b/c so many things happen on a daily basis and we have to concentrate on absorbing the info and processing it…we’ve barely been able to discuss how all of this will look once we get home. So please forgive the re-cap from earlier in […]