A blog about us. our lives. our struggles. our victories.

Rob and Anne-marie

I recently¬†watched this TED talk by one of the leading Dr.’s in GA-1. Sometimes I forget how serious Reagan’s GA-1 is. I forget because I am truly, truly trying to not live in fear. I am doing everything I can all the time to trust God. When a fearful thought comes into my head, I […]

“Will evildoers never learn–those who devour my people as men eat bread and who do not call on the Lord? There they are, overwhelmed with dread, for God is present in the company of the righteous. You evildoers frustrate the plans of the poor, but the Lord is their refuge.” -Psalm 14:4-6 “We won’t begin […]

“The Lord is King for ever and ever; the nations will perish from his land. You hear, O Lord, the desire of the afflicted; you encourage them and you listen to their cry,”-Psalm 10:16-17 “The cumulative effect of days upon years that we do not really understand is a subtle erosion. We come to doubt […]

Anytime I have to tell Reagan’s story about her genetic disorder and then subsequent crisis to a new person, they inevitably ask, “but she’s better now, right? Umm…well…in ways she is, yes. But I can’t answer that question with an unequivocal yes, she’s all better. This path is super hard, and I refuse to let […]

“Be exalted, O Lord, in your strength; we will sing and praise your might.” – Psalm 21:13 the very next verse “My God, my God, why have you forsaken me? Why are you so far from saving me, so far from my cries of anguish? O my God, I cry out by day, but you […]

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