A blog about us. our lives. our struggles. our victories.

Rob and Anne-marie

I opened my blog to write a new update and had an update I had started previously about having Reagan home and how wonderful it was to watch her play and laugh and walk around. Unfortunately, that’s not the blog I’m posting. On Tuesday evening around 6:40 p.m. we had finished feeding Reagan and were […]

Being in the hospital for eight days with my daughter has taught me a lot of things. I really don’t know how to begin this post, but as I write this on the sixth night of being in the hospital, I can tell you that we are ready to go home. With Reagan’s condition, Glutaric […]

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